Fabry Members

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Fabry patient organisations around the world

 

Australia
Fabry Australia

www.fabry.com.au

Austria
Gesellschaft Fur Mukopolysaccharidosen und Ahnliche Erkrankungen

www.mps-austria.at

Argentina
Asociacion de Pacientas de Enfermedadas Lisosomales de la Republica Aregentina

www.apelra.org.ar

Belgium
Belgian Organisation for Children and adults with a Metabolic Disease

www.boks.be

Brazil
Brazilian Association of patients with Fabry disease and their families 

www.fabry.org.br

Bulgaria
National Association of MPS Bulgaria

Tel: +359 898 688 767

Canada
Canadian Fabry Association

www.fabrycanada.com

Chile
Fundacion Chilena de Pacientas de Enfermedadas Lisosomales

Tel: +56 02 436 81 47

Columbia
Associacion Colombiana de Pacientes con Enfermedadas de Deposito Lisosomal

www.acopel.org.co

Croatia
Croatian Alliance for Rare Diseases
www.rijetke-bolesti.hr

Czech Republic
Society for MPS

www.mukopoly.cz

Denmark
Danish Fabry Group

www.fabry.dk

Ecuador
Funcacion Ecuatoriana de Pacinetes con Enfermedadas de deposito Lisosomal

Tel: +593 22 699069

Estonia
MPS Society Estonia

Postal address:
Ande Martin, MPS Society (Estonia)

Nisu 25-9, Tallinn, 0317, ESTONIA

Egypt
IEMFA – Inborn Error of Metabolism Friends Association
Contact person: Dr Laila Selim
Email: lselim83@gmail.com

Finland
Finnish Fabry Association

www.fabry.ms-liitto.fi

France
Vaincre les Maladies Lysosomales (VML)

www.vml-asso.org
Association des Patients de la Maladie de Fabry

www.apmf-fabry.org

Germany
Morbus Fabry Selbsthilfegruppe e.V.

www.fabry-selbsthilfegruppe.de
Morbus Fabry interessengemeinschaft
www.morbus-fabry-ig.de

Greece
The Greek Alliance of Rare Disease

www.pespa.gr
Greek Lysosomal Association “Solidarity” 
www.greeklysosomal.blogspot.gr

Hong Kong
Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases

www.hk-mps.com

Hungary
Magyar Mukopoliszaccharidozis Tarsasag

www.mpstarsasag.hu
The Hungarian Foundation for Patients with Fabry Disease
www.fabryalapitvany.hu

India
LSD Support Society

www.lsdss.org/

Indonesia
MPS and LSD Indonesia

www.ferofoundation.com
Indonesia IEM Parent Society
Contact person: Peni Parwati
Email:peni.parwati@ndso.astra.co.id

Iran
Charity of Foundation for Rare Diseases

www.cffsd.org

Ireland
Fabry Ireland

www.fabryireland.ie

Italy
Gruppo Italiano Pazienti Fabry

www.fabryonlus.org

Japan
The Japanese Society of the Patients and the Families with MPS

www.mps-japan.org
Japan Fabry disease patients and family association
www.fabrynet.jp
FabryNEXT
www.fabry-next.com

Korea
MPS Patient Organisation

www.mps.x-y.net

Luxembourg
Association Luxembourgeoise d’aide pour les personnes Atteindes de maladies Neuro-Musculaires et de maladies rares
www.alan.lu

Malaysia
Malaysia Metabolic Society

www.mms.my

The Netherlands
Fabry Support & Informatie Groep Nederland

www.fabry.nl

New Zealand
Lysosomal Diseases New Zealand

www.ldnz.org.nz

Norway
Fabry Patients Organisation
www.fabry.no/

Peru
Asociacion Peruana de Pacientes con Enfermedadas de deposito Lisosomal

Tel: +51 2611757

Philippines
Philippine Society for Orphan Disorders, Inc

www.psod.org.ph

Poland
Association of families with Fabry disease
www.fabry.org.pl/

Portugal
Associação Portuguesa das Doenças do Lisosoma

www.aplisosoma.org

Romania
Romanian Foundation For Lysosomal Diseases – FRBL
 Contact: Teodora Dumitriu by
Email: tfdum@yahoo.com

Russia
Russia Fabry Association

www.dorogakzhizni.nethouse.ru

Russia
Fabry Russia
www.fabryrussia.ru

Singapore
Rare Genetics Network

www.raregenes.org

Slovakia
Zdruzenie Ojedinelych Genetickych Ochoreni
Rare Diseases Patient society

www.zogo.sk

Slovenia
Slovenian Fabry association
www.sb-sg.si

Spain
Spanish Fabry MPS Association

www.mpsesp.org
ADAC – Asociación para las Deficiencias que afectan al Crecimiento y al Desarrollo
www.asociacionadac.com

South Africa
Rare Disease Society of South Africa
www.rarediseases.co.za
Gaucher Society South Africa
www.gaucherssa.co.za

Sweden
Patientföreningen för Fabrysjuka i Sverige

www.fabry.se

Switzerland
Fabry Suisse

www.fabrysuisse.ch

Taiwan
Taiwan Association of Fabry Disease

www.rare.org.tw
Taiwan MPS Society
7F, 16, Lane 102, Ho-Chiang Street.
Taipei 10478, Taiwan, R.O.C

Turkey
Turkish MPS Society

www.mpsturk.org

Uruguay
Asociacion Uruguay de Pacientes con Enfermedadas Lisosomales

Tel: + 598 99 682 500

USA
Fabry Support and Information Group

www.fabry.org
National Fabry Disease Foundation

www.fabrydisease.org

United Kingdom
MPS Society UK

www.mpssociety.org.uk

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